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When recovering in the hospital from my heart transplant it was made
clear by the nursing staff that before I could leave I must be able to
make up my medication and understand the difference between an infection
and rejection.
The Red Book is where everything is recorded.
-
Date
-
Post op day
-
Weight
-
Temperature
-
List and name of every tablet and dose taken.
-
Transplant number
-
Hospital record number and other details.
I am supposed to carry the book with me at all times so
that in an emergency all my medical details are accessible.
As this is not always practical I have a list typed up which I keep in
my wallet and golf bag.
Next time you watch "This is Your Life" on TV and
Eamonn Andrews, or is it Michael Aspel now? presents whoever with the red
book and says those immortal words, "***********" ,
This is Your Life", think of me.
I do not want to impose my medical files on anyone,
but for information purposes I have listed below 2 pages from my red
book to illustrate what I have to do daily.
The first example is from 'Post Op Day 7'
- 30th July 1999
| date |
post op day |
weight (Kg) |
| 30 July 1999 |
7 |
73 |
| |
|
|
|
|
|
| time |
8am |
2pm |
6pm |
8pm |
10pm |
| temperature |
36.4 |
|
36.9 |
|
36.6 |
| medication |
|
|
|
|
|
| |
|
|
|
|
|
| cyclosporin |
325 |
|
|
350 |
|
| azathioprine |
|
|
|
200 |
|
| prednisolone |
45 |
|
|
|
|
| acyclovir |
200 |
200 |
|
|
200 |
| ranitidine |
150 |
|
|
|
150 |
| nystatin |
1tab |
|
|
|
|
| nystatin (mouth wash) |
1 |
1 |
1 |
|
1 |
| oraldene |
10 |
10 |
10 |
|
10 |
| paracetemol |
1 |
1 |
1 |
|
1 |
| dihydrocodeine |
30 |
30 |
30 |
|
30 |
| sodium docusate |
200 |
|
|
|
200 |
| frusemide |
|
40 |
|
|
|
| amoxycillin |
500 |
500 |
|
|
500 |
| magnesium |
|
|
|
|
2tabs |
| cotrimoxazole |
2tabs |
|
|
|
2tabs |
| potassium chloride |
2tabs |
|
|
2tabs |
|
All I remember about this period of my recovery was
at 8am when breakfast was being served, I could not start till I had
consumed all of the above. By the time I had done so (it
took me 20 minutes) my breakfast was cold. Nevertheless I am
pretty certain that some of the chemicals were more important than a
slice of hot toast.
This is a picture of a
nurse listening to my heartbeat. As you can 'see' one of the
side effects of all the drugs is that I am invisible.
The second example is from 'Post Op
Day' 3125 - 24th
January 2008
| date |
post op |
weight(Kg) |
| 24th January 2008 |
3125 |
72 |
| |
|
|
|
|
|
| time |
8am |
2pm |
6pm |
8pm |
10pm |
| temperature |
36.0 |
|
|
|
|
| medication |
|
|
|
|
|
| |
|
|
|
|
|
| cyclosporin |
75 |
|
|
50 |
|
| azathioprine |
|
|
|
150 |
|
| prednisolone |
1 |
|
|
|
|
| lisinopril |
|
|
|
|
10 |
| warfarin |
|
|
7 alt 8 |
|
|
| simvastatin |
|
|
|
|
20 |
| quinine |
|
|
|
|
200 |
The tablets I have highlighted in red are the anti rejection drugs.
They are steroids and I will have to take them for the rest of my
life. They are also immunosuppressants which in English
means that I do not have an immune system - so please don't come near me
if you are ill.
Although I still take a canny few tablets every day, compared
to day 7 when I was taking in excess of 60/day I am now down to a measly
17/day. Each time I visit the Freeman minor changes only are
made, unless I have a specific new problem and then another tablet is
added/deleted increased/decreased.
The simplest way I can explain the process is to use
the analogy of a recording studio. When the producer is mixing the
record he is fiddling with the slides on his mixing desk, a bit of bass
here, more treble there etc. As one goes up so another comes down
and the process repeats, one up so another comes down - my medication
works on the same principle. Working on this theory my
cardiologist, Gareth Parry is the medical equivalent to George Martin. |