The Red Book(s)

24/01/08

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The one thing that all heart transplant patients from the Freeman Hospital have in common is that we must update our RED BOOK daily.

 

When recovering in the hospital from my heart transplant it was made clear by the nursing staff that before I could leave I must be able to make up my medication and understand the difference between an infection and rejection.

The Red Book is where everything is recorded.

  1. Date

  2. Post op day

  3. Weight

  4. Temperature

  5. List and name of every tablet and dose taken.

  6. Transplant number

  7. Hospital record number and other details.

I am supposed to carry the book with me at all times so that in an emergency all my medical details are accessible.   As this is not always practical I have a list typed up which I keep in my wallet and golf bag.

Next time you watch "This is Your Life" on TV and Eamonn Andrews, or is it Michael Aspel now? presents whoever with the red book and says those immortal words,     "***********" , This is Your Life", think of me.

I do not want to impose my medical files on anyone, but for information purposes I have listed below 2 pages from my red book to illustrate what I have to do daily.  

The first example is from 'Post Op Day 7' - 30th July 1999

date post op day weight (Kg)
30 July 1999 7 73
           
time 8am 2pm 6pm 8pm 10pm
temperature 36.4   36.9   36.6
medication          
           
cyclosporin 325     350  
azathioprine       200  
prednisolone 45        
acyclovir 200 200     200
ranitidine 150       150
nystatin 1tab        
nystatin (mouth wash) 1 1 1   1
oraldene 10 10 10   10
paracetemol 1 1 1   1
dihydrocodeine 30 30 30   30
sodium docusate 200       200
frusemide   40      
amoxycillin 500 500     500
magnesium         2tabs
cotrimoxazole 2tabs       2tabs
potassium chloride 2tabs     2tabs  

All I remember about this period of my recovery was at 8am when breakfast was being served, I could not start till I had consumed all of the above.   By the time I had done so (it took me 20 minutes) my breakfast was cold.   Nevertheless I am pretty certain that some of the chemicals were more important than a slice of hot toast.

This is a picture of a nurse listening to my heartbeat.   As you can 'see' one of the side effects of all the drugs is that I am invisible.

 

 

 

The second example is from  'Post Op Day' 3125 - 24th January 2008

date post op weight(Kg)
24th January 2008 3125 72
           
time 8am 2pm 6pm 8pm 10pm
temperature 36.0        
medication          
           
cyclosporin 75     50  
azathioprine       150  
prednisolone 1        
lisinopril         10
warfarin      7 alt 8    
simvastatin         20
quinine         200

The tablets I have highlighted in red are the anti rejection drugs.   They are  steroids and I will have to take them for the rest of my life.   They are also immunosuppressants which in English means that I do not have an immune system - so please don't come near me if you are ill.

Although I still take a canny few tablets every day,  compared to day 7 when I was taking in excess of 60/day I am now down to a measly 17/day.   Each time I visit the Freeman minor changes only are made, unless I have a specific new problem and then another tablet is added/deleted increased/decreased.  

The simplest way I can explain the process is to use the analogy of a recording studio. When the producer is mixing the record he is fiddling with the slides on his mixing desk, a bit of bass here, more treble there etc.  As one goes up so another comes down and the process repeats, one up so another comes down - my medication works on the same principle.

Working on this theory my cardiologist, Gareth Parry is the medical equivalent to George Martin.

 

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This site was last updated 01/24/08