Red Book #3

03/07/07

Home
My Current Red Book
Red Book #5
Red Book #4
Red Book #3
Red Book #2

 

For those of you who want the graphic details of the procedure listed below, which makes up part of the "MOT" I suggest you click on it. 


Angiogram

I agree with everything in the hyperlink "Official" version, except for the bit about after the angiogram.   At the Freeman Hospital it is now the procedure to lie flat in bed for 1 hour only followed by 1hour sitting up.   If everything is OK you can get dressed and relax and enjoy your overnight stay in the hospital.

Footnote - I would not recommend that you play on your pogo stick for a couple of days as the groin area will feel a little tender.

ECG = Electrocardiogram

Description courtesy of British Heart Foundation:-

"A test to record the rhythm and activity of the heart.   Small metal patches, set in sticky plaster are put on the arms, legs and chest and are connected to a recording machine.   This recorder picks up and amplifies the electrical signals produced by each heartbeat.   A few beats are recorded from each set of electrodes and recorded on graph paper.

An 'ECG' can detect abnormalities of heart rhythm.   It can tell if a person has had a heart attack, either recently or some time ago.   It can also give information on whether the heart has become enlarged or is working under strain.

The ECG is very straight forward and only involves the removal of your shirt and the rolling up of the trouser leg.    Once the procedure has been completed you become a 'Freemason'.  

After a very pleasant night's stay in the Freeman Hospital, immediately after breakfast it is down to the clinic and the results are given by Gareth (Cardiologist).

I am happy to report that everything showed up in apple pie order and my medication remained the same.   Gareth attempted to show me the pictures of my heart on his lap top but they had not been downloaded into the system at the time of my results.

The only signs of my MOT were bruising at the top of my leg where they entered the dye and the 'nick' on my neck from the biopsy.   If you really wanted to know how many biopsies I have had it is possible to count the tiny scars of my 14 so far.

Next visit(s) = 29th September - 'bloods'/11th November - 'Review'.

One of the side effects of taking cyclosporin (neoral), at least it is in my case, is that my gums grow excessively and I am having on-going treatment at the dental hospital in Newcastle.   I am a guinea pig for removal by laser surgery as opposed to removal by scalpel and my next visit is 11th September 2003.

I will keep you posted.

 

Newcastle Dental Hospital - 11th September 2003

As a result of my medication, especially cyclosporin (neoral) I suffer from excessive gum growth.   So I am part of a study which compares the effect of two different types of removal.

I shall quote directly from the information sheet that was given to me, skip this bit if you wish:-

"Clinical Evaluation of the effect of two types of surgical intervention in the management of drug induced Gingival Overgrowth"

"After organ transplantation, many patients experience changes in the soft tissues of their mouth (especially overgrowth in the gums around the teeth) that results from medication.   As the overgrowth becomes more severe the extra tissue needs to be surgically removed.   Unfortunately this tissue often regrows some time after surgery and the procedure needs to be repeated.

We would like to invite you to take part in a study comparing two types of gum surgery in terms of less postoperative discomfort, better healing and prevention of recurrence of regrowth of extra tissue".

____________

OK you can open your eyes now, what all of the above means is that one side of my mouth is treated in a conventional manner using a scalpel - OUCH, and that the other side of my mouth is treated by use of a laser (remember Goldfinger?).   To be honest I don't mind either procedure as my gums are numbed and I switch off mentally (not hard for me to do) when they are doing their thing.

I have my gums and teeth photographed and I do believe I was the star turn at the Cannes Film Festival for dentists earlier in the year, I am still waiting for the cheque.

My next visit is 11th December and I just can't wait!

_______________________________________

Monday 29th September - "Bloods" @ The Freeman Hospital

Every 6 weeks I have to go to the Freeman and today's visit was what we call "bloods".   This simply means that on this occasion they take a blood sample (very nearly an armful I can tell you) record my weight and take my blood pressure.

As it happens my BP was very high today - 143/94 - but as ever the staff at the clinic never bat an eyelid.   The normal procedure is that I have to ring back the following day and they give me my results, I would not be surprised if they tweak my medication.

I played golf at 11am after my visit and have to admit that I suffered a couple of dizzy spells which were more severe than normal.   It can be very disconcerting but as long as I settle down and take my time it generally passes within a minute or so.

My next appointment is scheduled for November 11th and is for a "review".   This is a bit more of a thorough going over and I will give you the details following my visit.

Tuesday 30th September

I had to ring the transplant clinic today to get my results of the blood tests.   They have lowered my level of cyclosporin (neoral) to 100mg / 75mg.   This is the lowest it has been since my transplant.   I assume it is good news.   On my next visit I shall make a point of asking.

I had another day of dizzy spells today - in fact I was up at 4am as I could not sleep.   I watched Tony Blair make his speech to the Labour Party Conference in the afternoon and that did the trick - I was 'out like a light'.

___________________________

Tuesday 11th November - 'Review' @ the Freeman Hospital

I have to arrive at the transplant clinic for 7.30am at the Freeman hospital.   At this time in the morning the 7 mile trip only takes 15 minutes, which is good.

bullet

 The first job is to be 'clerked in'.

This involves being weighed - 70 Kg
Blood Pressure being checked - mine was 143/96 which again is  too high, I think.
Temperature - 35.9c
Check current medication details with nurse.
 

bullet

'Bloods'

I have my blood taken - ouch!   Right arm did not work so I had to use left arm - ouch! ouch!   Worked OK at third time of asking.
 

bullet

X-Ray

Wander over to X-Ray department to have my picture taken.   No problem.
 

bullet

ECG

Next stop is a visit to the ECG unit.    A ten minute wait and then procedure takes another 5 minutes.  
I always have a little laugh to myself as I am leaving the unit because I cast my expert eye over the print out (everyone does) of the ECG and for all the world look as if I know what I am looking at.   In fact it is a series of graph lines which represent the beats of the heart.   They could just as easily represent the voting intentions of 16 foot tall giraffes at the next jungle election.   The lion always wins anyway.
 

bullet

Clinic

I have to take my ECG reading and X-Ray pictures back to the clinic and put them into the cardiologists 'in tray'.
 

bullet

Tea Break

It is now about 9am and after having checked with Jen, the wonderful sister in the clinic, I probably have at least half an hour to wait.   Only one thing to do and that is to mosey on over to the excellent cafe/restaurant at the Freeman.
A cup of tea and two slices of toast with margarine and jam costs £1.01.   Pick up a discarded copy of the Sun newspaper and give it the once over as I break my fast.   Enjoyed my cuppa and decide the Sun is a joke.
 

bullet

Back to Clinic

This is the boring bit when I have to wait my turn for my consultation with Gareth, Mr Parry, our fantastic cardiologist.
10.15am and it's my turn.
Gareth (everyone calls him by his first name) gives me the once over with his stethoscope.    Checks my X-rays, ECG print out, discusses any problems I may be experiencing and writes copious notes.
The main concern is my continuing dizzy spells, but it does not seem to bother Gareth, therefore I am not going to worry.
He tells me to stop taking one of my tablets (ranitidine) which is for indigestion problems I think.  
 

bullet

Finished

All done and I head for home and arrive back at 11am.   The whole process has taken 4 hours including my travel, which I think is marvellous.   Once in the system, which obviously I am, the treatment and care I receive cannot be faulted.

 

bullet

Extra Info.

Gareth is doing an interview with Annabel Jefferson on Thursday.    She is the student who came to see me last week and interviewed me for about 1 hour.   Annabel  signed my guest book on 7th November, have a look I won't be too embarrassed.    She is doing a degree course in Radio/TV/Media and one of her projects is transplant recipients involved in sport.
When it is completed her radio programme will involve three transplant sportsmen/women and Gareth discussing the whole process of competing and taking part in transplant games.   Should be good.
 

bullet

Finally

I have to ring the clinic for my results tomorrow afternoon.   I will be informed of any changes to my medication and given my next set of appointments.   Which will probably involve a biopsy.

Wednesday 10th December 2003 - 'Bloods' @ the Freeman Hospital

I arrived at 7.30am and had my bloods taken.    Saw the nurse who checked my temperature, weight and blood pressure and double checked my medication.   I was back home for 8.30am.

Isn't the NHS wonderful?   Especially the Freeman Hospital.

I have to ring tomorrow for my results.   I am also due at the dental hospital to take part in my trial. will give you all the gen tomorrow.

Thursday 11th December 2003

AM

I attended Newcastle dental Hospital today for my final 6 month check up in the 'experiment' I have been part of.   It turns out that the treatment that suits me best with regard to keeping the gum growth to a minimum is the good old fashioned scalpel as opposed to laser treatment.

So it will all start again come the new year when my ongoing treatment resumes.   I can't wait!


PM

I had to ring the transplant clinic for the results of my blood tests yesterday.   It seems that everything is OK and there are no additions or changes to my daily fix of 20 or so tablets.

Yummy yummy I just love popping all of those pills.

My next visit is scheduled for January 14th 2004, which just happens to be my birthday.
 

 

Home | My Current Red Book | Red Book #5 | Red Book #4 | Red Book #3 | Red Book #2

This site was last updated 07/03/07