Red Book #5

03/07/07

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For those of you who have asked, I am going to explain (in not too much detail) some of the procedures that are part of my ongoing treatment.

 
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Friday 16th December 2005 - Freeman Hospital - review
postponed because of illness.

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Tuesday 20th December 2005  - Freeman Hospital -  review.

Not surprisingly I had put on 3kg as a result of not being able to train, so my weight was recorded as a massive 74kg.   I shall have to be careful over the Christmas period that I don't explode!

My blood pressure was relatively normal at 138 / 89 and temperature 35.9°C.   The results of my ECG and X-ray will be given tomorrow as will any change in medication.

Everything OK- no change.

 
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Friday 28th October -  Freeman Hospital - 'Bloods'.

There were only four of us in clinic this morning so I was in and out within half an hour and back home by 8.20am.   How good is that?

My weight was 71KG and blood pressure 128 /88 which is perfectly respectable and temperature 35.9°C.   All in all - not bad.
 

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Monday 10th October - GP Surgery - Flu jab

In and out within 5 minutes, no problem at all.

 

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Thursday 29th September - Dental hospital.
Surgery to my gums - ouch, ouch!!

My blood pressure was a whopping 143 /101 which, to say the least is canny high.   It also proves that despite the calm exterior I must have been petrified about what was to come.

I need not have worried because Prof Seymour performed the surgery for the benefit of the young 'students', who watched in awe, as he performed his wizardry with the scalpel.  

After sitting in the rest room for half an hour my BP had settled to a more 'normal 140 / 86 and I was allowed home.  

My next visit will be in about 6 months.

 

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Tuesday 13th September - 'Review' - Freeman hospital

My weight was 70Kg and back to normal.   Temperature was 35.9°C and most remarkable of all was my blood pressure; 115 / 87.   This is just about as normal as it gets and as a result my cardiologist, Dr Gareth Parry, reduced my lisinopril from 10mg to 5mg.

I still need to ring tomorrow after my bloods are analysed to see if anything else can be tweaked.   Possibly my backswing?


 

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Tuesday 9th August - Royal Victoria Infirmary (RVI) - surgery to scalp.

The procedure to remove a wart from the top of my scalp was less painful than a routine trip to the dentist.   It was all over in twenty minutes and but for a load of vaseline type stuff to protect the wound, no-one would notice anything.

If, after conducting a biopsy on the removed tissue, there is anything to worry about the hospital will contact me in about 6 weeks.   Let's hope I never hear from them again!

Update:   I received a letter with the biopsy result and it was a wart that was removed from my scalp.   Nothing to worry about.
 

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Monday 8th August 2005 - Bloods - Freeman hospital.

My weight was 71Kg, slightly up as a result of 3 weeks in Canada.   My blood pressure was 128 / 96 and temperature 36°C.

BP slightly high but otherwise a fairly normal set of results.
No changes to my medication.
 

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Sunday 23rd July 2005 - 6 years post transplant.

If someone had told me 6 years ago that I would be in Canada taking part in the golf and 100m at the World Transplant Games I would have been in stitches.    Come to think of it I was!
 

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Monday 11th July - 'Bloods' - Freeman hospital.

My final visit, before the World Transplant Games, to the transplant clinic this morning was completed at 8.15am.   My blood pressure was remarkably normal at 117 / 78 which for me is great news.  Temperature was 35.9°C and my weight 69Kg.    A phone call to clinic tomorrow will reveal  any changes in my medication.

Update:   My warfarin has been changed to 8mg on weekdays and 9mg at the weekend.   Same as the Daily Mail really;    we get the Times every day (inc Saturday and Sunday) but only receive The Mail on weekdays.
 

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Thursday 7th July - Dental hospital

As a result of today's visit I have to return on Thursday 29th September for more surgery on my overgrown gums.   Baah baaah.
 

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With amazing agility I left the dental hospital and legged it down to the RVI for a consultation with a dermatologist about the bump on my bonce.
I have to return on Tuesday 9th September for surgery and have it removed.   I feel a bit like a boiled egg really.   Simply, crack with a spoon and whip the top off.
 

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Thursday 16th June - 'MOT' - Freeman Hospital

 

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Weight = 70 Kg.   Temperature = 35.9.

My Blood pressure immediately before my biopsy was 147 / 104, which is a perfect demonstration of my cowardice.   I need not have worried because the 'op' went very smoothly and but for the initial 'scratch' was completely pain and worry free.

In the recovery room my BP was recorded at a whopping 154 / 99 but some twenty minutes, later once I had settled down, it was recorded at 131 / 87.   All this demonstrates how mind and body defend against oncoming crises!   Or to put it another way - I am just a big coward!

The angiogram, to me, is completely worry free and much more comfortable to bear.   The young Irish registrar who worked with the consultant was very good and I even managed to watch the procedure on the bank of TV screens next to the operating table.   I was hoping to see some golf from the US Open, but had to settle for a probe in my beating heart.

The rest of the day was spent in bed for about three hours.   I think it should be four, but as no nurse came to check my groin or do my 'obs' after the initial occupation of my bed in Ward 30, I decided to get up and go for my ECG and X Rays before they closed for the day.

The next time I saw a nurse was at 10 pm before lights out and then again in the morning at 6.45am.   I left the ward at 7.45am, went to the hospital restaurant and paid for my breakfast.    Having been told we had to leave the ward by 7.30am and report to clinic I half expected not to be allocated a breakfast, so I quit whilst ahead.  

I simply said cheerio to my bedfellows and left for breakfast.   No doubt someone is looking for me at this moment.   I popped back to Ward 30 to collect my notes after breakfast, so at least they know I was on my way to clinic.

I have never criticised the Freeman hospital since my heart transplant, because everyone in the transplant clinic, ward 27 and 27A is fantastic and  we are always treated like royalty.   I could not pay for better care or treatment and am proud of this wonderful hospital in Newcastle.

This time it was different!   I feel the service and attention I received on  Ward 30 was very poor.   Only once did a nurse check my wound.   I had to clean the area around my groin with a paper towel and hot water in the ward toilet.   I was probably on my feet earlier than I should have been, but as no one was coming to see me I decided for myself when it was time to get up.
 

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Finally my consultation with Gareth Parry, my cardiologist.   He showed me a recording of the images taken during my angiogram and as ever was very thorough and reassuring.   The images of my beating heart were (to me) identical to those taken in 2003 at my last angiogram.   He gave me the all clear to take my place in the  GB team for the forthcoming XVth World Transplant Games in Canada.

 

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Wednesday 25th May  - 'Review' - Freeman Hospital

My weight was 70kg (no change) and temperature 36°C which is good.   My first blood pressure reading was 137 / 99 which even I know is a shade too and high had to be retaken.   The second attempt was 143 / 97 which is a little better, just

After my ECG and X Ray I waited patiently to see my cardiologist, Gareth Parry for a once over.   I told him about not feeling so good for a twenty minute spell whilst playing golf on Monday.   He suggested, correction, he told me that I must have my MOT which includes an angiogram and an overnight stay in hospital before I depart for the World Transplant Games in July.

So I am booked in for Thursday 16th June, which is 3 weeks today.   He is also making an appointment for me to see a dermatologist about the thing on my head, which is definitely not a pom pom hat.

Before leaving clinic I had to have my blood pressure checked again.   It was 139 / 96 - so they let me go!

I will ring clinic tomorrow to find out if I am fit to walk the streets until my MOT.   Apart from all of the above, I feel fine.
 

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Monday 18th April - Freeman hospital - 'Bloods'

Despite the fact I had slept in, my blood pressure was remarkable for it's normality at 130 / 84 after rushing to get to the clinic.   My weight was steady at 70kg and temperature was 36.0°C.  

Approaching nearly 6 years post transplant I still jump when about to give blood but sister Mary is an expert in these matters and can hit a moving target at close range nearly every time, thank goodness.

I was back home at 9am and a bacon sandwich was on a plate for me.

 

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Thursday 17th March - The Dental Hospital.

It was the luck of the Irish with me on this St Patrick's Day as I was reprieved surgery for 3 months.   Whoopee!

 

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Friday 4th March  - Freeman hospital - 'Review'

When I arrived at the transplant clinic at 7.30am there was only an Irishman sat in the waiting room, which is very unusual.   Not that he was Irish, but that there were only the two of us.   Normally there are at least half a dozen patients ahead of me.

My temperature was 35.9°C and weighed in at 70 Kg. which is all very normal.   My blood pressure which was very high when I visited my GP's three weeks ago (145/93) was 132/96.   Hmmm, I'm not too sure about that, however they passed no comment so I assume everything is tickety boo.

Over to the ECG department, I was the first one there and was in and out in less than 5 minutes.   The X-ray dept does not open till 8.30am so I took myself down to the excellent cafe and had some breakfast.   A snip at £1.90.   Called in for my X-rays on the way back to clinic and sat reading the paper until my consultation with the cardiologist.

I was back home at 11.15am and have to ring on Monday to find out if I am fit to walk the streets.

Update - No change

 
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Monday 14th February 2005  - GP - medication review

Oh dear!   I had to attend my GP's today for a simple review of my medication so that my prescription sheet does not become as long as roll of toilet paper.   Once that was sorted my weight was checked =70 Kg.   Then my blood pressure.

The first attempt registered 154 /108 !   Even I know that is high.
The second attempt was marginally better at 145 /93.

The surgery nurse was very concerned and asked if I wanted to come back to tomorrow or ring the Freeman Hospital. 

I played golf this morning and felt OK but must admit I feel a little dizzy / light headed as I am typing, but this is a regular occurrence which I always tell the cardiologist and clinic nurses about.   I shall report back tomorrow.
 

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Update 15th February:   I rang the transplant clinic and informed them of my BP reading.   As usual, they told me 'not too worry'.   Phew!

 
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Wednesday 19th January 2005  - Freeman hospital - 'Bloods'

I arrived at 7.30am for my appointment in clinic and was back in the house at 8.15am.   Having had my 'bloods' taken (results tomorrow), weight and blood pressure checked and a quick consultation with the nurse who reviewed my medication.   How good is that?

My blood pressure was a very creditable 129 / 85 which is much better than on my lat few visits, check out Red Book 3.   My weight was up a little at 71Kg which is +1 more than usual but as I am playing golf a little later today should be back to normal.

I was chatting away to the young nurse who I had not met before and asked if she was new in the clinic.   She told me that she was only standing in because the phlebotomist was on holiday.   Not heaving heard this word before I asked what it meant, as you do.   Do you dear reader, without referring to a dictionary, know what a phlebotomist is?   I will buy a pint for the first correct answer (that's a clue).

I will ring the clinic tomorrow afternoon for the results and will learn if there is any change to my medication.

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Update - No change.

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Since my visit to the clinic I have developed a serious ache/pain in my lower back hip area.   I am hoping it is just one of life's little niggles but it causing me a lot of pain.   I will give it a few days, I am due for a visit to the gym on Tuesday and will know if it is any better or worse, and then do something about it if necessary.

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